This community is sponsored by ThyCa: Thyroid Cancer Survivors' Association, an Inspire trusted partner. My partner was waiting in the lobby and then I was moved to my room just before 11pm. I didnt get to see the Drs who did the surgery the Dr I did see told me to hold off on the CT scan and to go back to it if the vestibular training doesnt work. The biopsy of the left thyroid nodule was rated as Bethesda category IV (follicular neoplasm), and the lymph node was consistent with metastatic papillary thyroid cancer. Trust me they are, but I worked it out. I told them I had good insurance and that I'd take care of the bill after surgery (which is the arrangement I had with every other service provider for my thyroid cancer). For starters I only discovered what an endocrinologist or Thyroid even was like 8 weeks ago. My Experience with thyroid cancer - so far: Papillary and follicular thyroid cancer (differentiated), Multiple endocrine neoplasia type 2 (MEN2), Mental challenges of living with thyroid cancer, ThyCa fundraising and thyroid cancer research grants. A new nurse was on duty at that point and she pointed out that thicker things were easier to swallow than thinner things. He said I was drenched on my back, and at that point I'd had all I could take of that plastic and paper gown and it came off me and onto the table. his right arm had a deep muscle hurt, like a toothache. In late November I realized I was getting mild depression and my workouts were getting harder to do and basically was running out of energy. Emerging from my first anesthesia experience was quite honestly like waking up from a bad alcohol blackout where you have no idea what was going on for the last few minutes, hours, days?, weeks? Hi Sweetpea2936! The transfer team asked me to put the bair paws gown back on and I said no it was too hot. Call our office at 410-328-6187. My wife took my kids up to her parents in Wisconsin and my mom stayed with me in Chicago. By the time my room was ready I had eaten two cups of ice chips and was extremely thirsty. Mine was 10-11 hours and I came out with a scar in the shape of a "U" that goes from ear to ear. A randomized controlled trial was conducted. At the end of the first week, the NPDS scores (mean [SD] = 8.82 [12.23] vs. 30.28 [12.09]), neck sensitivity scores (median [IR] = 0 [.75] vs. 2.00 [4.0]) and pain levels with neck movements (median [IR] = 0 [2.0] vs. 3.5 [5.75]) of the stretching exercise group were significantly lower than those of the control group. But, the pain I had last night was sharp. 7 weeks after TT and like 2 weeks after RAI. These symptoms may persist for long . Lots of people on here talk about how awful having a thyroid replacement medicine is, and that no one ever feels totally ok on it. Then I read where the glands do not show up on CT. You can get angry or upset if you want, but in the end it is what it is and you got to just keep pushing along with your life. I will admit it defiantly made me dizzy but I was able to safely drive to work afterwards. I hope this helps someone worried about what the surgery will be like. The Effectiveness of Neck Stretching Exercises Following Total - PubMed Thorsen RT, Dssing H, Bonnema SJ, Brix TH, Godballe C, Sorensen JR. World J Surg. On the 9th of September I had an appointment with my PCM and he confirmed I still had a major ear infection and gave me different antibiotics for it. I have always preferred water at room temperature. The Effect of Head-Neck Stretching Exercises After Thyroidectomy on Ylinen J, Takala EP, Nyknen M, Hkkinen A, Mlki E, Pohjolainen T, Karppi SL, Kautiainen H, Airaksinen O. JAMA. I had many thyroid nodules but the largest,cancerous one was 3.8 cm. . A full Thyroidectomy was done 6 days ago. This is normal and will gradually get better as the wound heals. The .gov means its official. If skin is not sufficiently retracted after 6 months, anterior neck lift or lower face/neck lift should be a consideration. Ask questions on here. I am usually not one to write on here because It is my husband who had thyroid cancer in 2013 & most recently a neck dissection on his right side they removed 31 lymph nodes & thankfully only 1 was cancer. I also covered the furniture with sheets and cleaned up with soap and water and a dry towel everyday. Another thing I get to consider is that when I get dizzy my knees tense up and start hurting a lot more so now that I am doing the Vestibular training I will be having more knee/leg pains. But, I wasn't really all that coherent, so I asked if I could have some water (remember, nothing to eat or drink from midnight the night before so, I'm getting on 23 hours without food or drink) CRUSHED GLASS IN ACID MIXED WITH GRAVEL couldn't have felt that horrible. sharing sensitive information, make sure youre on a federal So today I began seeing a new primary care doc (because of new insurance) and asked if she'd feel ok with managing my thyroid stuff, and she agreed to. Parathyroidectomy - Mayo Clinic Every step of the way I've made sure to get the best of the best, and so many times I've gone to new specialist who have said "you're so lucky you had the surgeon that you did, because he's the best of the best and did a fantastic job". After thyroidectomy, patients were called by phone in the 1st week and 1st month. After getting zero sleep last Sunday night I arrived at the hospital at 6:00 a.m. sharp on November 23. Now though my right knee has been making me limp a bit for the past few weeks will have a Dr Appointment while on convalescence leave. Neck /throat tightness and pressure Total Thyroidectomy 16 . NSAIDs and duloxetine was not effective for these symptoms. By really looked into it I mean I called lots of doctors looking for one to do the robot assisted surgery. Stretching exercises vs manual therapy in treatment of chronic neck pain: a randomized, controlled cross-over trial. They did look at the CT scan report and told me that all the radiation was in the neck and that was a good thing and the scan looked clean but I will have to wait for the official follow-up with my endocrinologist on the 18th of June for the Official results. October 26th it has been a few weeks since I had physical therapy for my knees and I admit my knees are not hurting as much as they were before I started but work has not had workouts for the past 2 weeks so I havent been stressing my knee either. You can relieve the discomfort using non-steroidal pain medication like ibuprofen. A few randomized trials, mostly using inadequately validated instruments, showed significantly reduced neck pain, neck stiffness, movement disability, and need for postoperative analgesics by applying neck and shoulder exercises after thyroidectomy [8, 21-23]. HHS Vulnerability Disclosure, Help The usefulness of rehabilitation (i.e., a stretching exercise) for reducing these symptoms after surgery has never been studie Again, my surgeon only says it's normal with minimal to no explanation whatsoever. Getting up and moving was huge - really helped shake off the remaining cobwebs from the anesthesia. Before There's just so many nerves and glands and other structures in your neck that you don't want to mess with, don't make the mistake of blindly putting your future in some random doctor's hands. PDF Annals of Pain Medicine Case Report - remedypublications.com He admitted that he would have liked to have seen me when I was still had my thyroid issue but we will work from where I am. I've read posts on this board from people who say they've met with doctors who were evasive about answering certain questions. Ylinen J, Kautiainen H, Wirn K, Hkkinen A. J Rehabil Med. Thyroid Surgery (Thyroidectomy): Prep and Recovery - Verywell Health Our patient has a persistent Horners syndrome 4 years after her thyroidectomy. I hate the word goiter. We watched tv and I prepared to watch the Monday Night Football game (pretty much normal for me). I went home around noon the next day and the hour long drive home wasn't that bad. July 26th Another mental health appointment, another good visit he is defiantly happy with how I am doing and we are figuring out that I probably dont need too many more appointments for now at least. 3 Sep had an appointment with my primary care doctor for setting up appointment for my right knee and more ear drops for the infection. The surgical pathology reported a 5 cm papillary thyroid cancer in the left lobe of the thyroid with lymphovascular invasion, microscopic positive surgical margins, with five of 59 positive lymph nodes (two left level IIA nodes, one Delphian node and two level VI nodes). It was another small blow knowing that I had 2 types of thyroid cancer not one. No chemo or typical radiation but I had pretty major surgery, will need to take meds the rest of my life and LID and RAI was/is no picnic. You are now HYPOTHYROID. Stretching Exercise for the Prevention of Postoperative Neck Symptoms The week of the 20th to 25th I had my first run-through of TAP class, there is so much information they give you there I am so glad I can go again prior to retiring. I really looked into doing the surgery using the daVinci robot with the incision in the arm pit not on the neck. Has anyone struggled with breathing issues post TT? Suffice to say, I was a total and complete mess. When I told my endo 3 weeks ago that I feel cruddy, I had a blood panel done and everything is in the normal range. One local and one about 50 miles away at a major teaching hospital. A 27-year-old woman with no significant medical history presented to our institution for management of her thyroid cancer. By 6:30 or so I was famished. I know part of it is because of my cats needing cuddles at 3 am, but I was wondering if anyone else had this problem. So, I feel like I'm ending on a negative note but this is my reality right now. It is estimated that 70% of patients with Horners syndrome after thyroidectomy will have permanent damage or incomplete recovery while the remaining 30% will completely recover between 5 to 15 months after surgery. ThyCa: Thyroid Cancer Survivors' Association, Inc. I was sent to the ICU (I knew I would be going there) because the surgeon wanted me to have better nurse ratios overnight. Thyroid Surgery Process - Penn Medicine The PubMed wordmark and PubMed logo are registered trademarks of the U.S. Department of Health and Human Services (HHS). After two weeks I just showered and shampooed normally. On the 4th of May 2010 I was back at Madigan for a radiation count on my thyroid followed by my second uptake dose of radiation (RI-123 UPTAKE) 2.8 mCi I-123 t1/2= 13.2 hours Growths: Masses, including tumors, cysts and bone spurs, can put pressure on the nerves in your neck, causing pain. Now, it was time to take my dinner pills. Complementary and alternative therapies for back pain II. Now I am two months post thyroidectomy (and 1.5 weeks pre-RAI) and I am experiencing throbbing, stabbing (on and off for the past few hours) ear pain in my right ear. The result of the biopsy concluded Papillary Carcinoma. 14 Months After Thyroidectomy. 2 Mar 2011 1 year from being told I have cancer. After hours emergency: A/Professor Miller's mobile - emergency only please. Bilateral recurrent nerve paralysis resulting in adduction of the vocal cords is a rare life-threatening complication (occurring in less than 0.1% of cases that requires Was able to do up and down 3 times each leg. Now, remember, I chose the doctor who does up to 500 thyroidectomies per year over the one who only does 50. At 18 days post surgery the throat pain flares up only if I over use my voice. I got about half a sip down and the other half went all over my hospital gown. The ThyCa: Thyroid Cancer Survivors' Association Support Community connects patients, families, friends and caregivers for support and inspiration. Early in August my kneed started acting up (been giving me pain for 7 years but I was told they couldnt do anything about it. My surgeon has me taking 500mg calcium with vit.D along with Tums for my parathyroids (they were left intact during the surgery, but my doctor put me on the calcium as a precaution). was it there all along? Know that this cancer is treatable and you will be ok but do not belittle your diagnosis - it sucks- don't neglect your fears they will eat you up. It's a scary place I don't really want to go back to. Nothing like feeling normal. The ENT said I didn't need a biopsy because my nodule was so big and he recommended to just do a total thyroidectomy (TT). PDF Thyroidectomy/ Parathyroidectomy Post-Operative Instructions Clipboard, Search History, and several other advanced features are temporarily unavailable. Swallowing discomfort. 1) When can I start running and exercising? Which on one hand I'm annoyed, but on other hand - if its cancerous GET IT OUT. Could this be from the RAI even 3 weeks after? Surgery took 6.5 hours and everything went well. The type of pain that you will feel greatly depends on the kind of surgery you've had. In the meantime non-invasive treatments based on ultra sound, radio-frequency may help. I was told I had a goiter and it could be cancer so I needed to get to my primary dr asap. My time in the ICU was unpleasant, but only because I wasn't able to get any sleep the night before my surgery and the night I was there. This hospital uses fentanyl and midazolam post-op. I did not have a JP drain, but I've had them for other surgeries and I know they are annoying. At 21yo, fairly advanced cancer (luckily only papillary w/ follicular variant) was about the last thing I was expecting, so that was definitely a fun little discovery. I was sweating pretty badly and was given anti-nausea medication (it really wasn't that bad to be honest). Your neck is likely to be swollen and may feel hard and numb right after the surgery. Both surgeons recommended almost the exact same treatment plan. What Causes Pain in Incision Months After Surgery? 2019 Aug 8;49(4):1185-1191. doi: 10.3906/sag-1812-55. Once I heard that I was really happy. Korean Society of Laryngology, Phoniatrics and Logopedics Guideline Task Force; Ryu CH, Lee SJ, Cho JG, Choi IJ, Choi YS, Hong YT, Jung SY, Kim JW, Lee DY, Lee DK, Lee G, Lee SJ, Lee YC, Lee YS, Nam IC, Park KN, Park YM, Sung ES, Son HY, Seo IH, Lee BJ, Lim JY. On Friday the 8th of October I will have the stitches removed from my eyebrow everything looking good. He has started scheduling me with weekly appointments. After getting checked into the radiation isolation room #625, they brought me my dose of radiation 175 mCi of I-131 t1/2= 8 days. Also, they put on my legs those devices that squeeze your legs to prevent blood clots, they said they'd hook them up in the OR. Next for me is RAI and then WBS. On my own, I wonder about muscle weakness after that surgery. Federal government websites often end in .gov or .mil. It took me a bit to realize that it was now 11pm. Then a bunch of insurance crap happened (my entire surgery may not be covered because the ENT was not on my list of docs I could see - this is bs but a completely different story) and I had to start driving an hour away to see an endocrinologist.

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